Personalised Digital Nutrition Program for People with MS – Lived Experience Advisory Panel
The project
The MS Nutrition Research Program, based at Deakin University and Curtin University, investigates the links between diet and MS, and aims to resolve the confusion about diet for people with MS. They have worked with the MS community to co-design a digital nutrition program, which they are looking to further develop and test in a clinical trial with 300 people with MS. They are looking for 8-10 people with MS to join their Lived Experience Consumer Panel. The Panel will be involved in a project to develop and test a digital nutrition education program that is tailored for people with MS, called Eating Well with MS.
The involvement opportunity
The researchers are looking for 8-10 people with MS and immediate family members of people with MS who have an interest in guiding the direction of the research. This would involve 3 to 4 one-hour online meetings per year over the next 3 years, and some occasional email communication between meetings.
The team would like you to contribute by:
- Providing guidance on the design of the project
- Reviewing and providing advice on the content in Eating Well with MS
- Reviewing study materials, including plain language statements and participant consent forms
- Advising on participant recruitment strategies
- Advising on how best to share the results with the MS community
- Ensuring the values and needs of people with MS are prioritised
Skills and experience
Researchers are looking for people with MS or immediate family members of people with MS. You can be located anywhere in Australia.
There are no formal qualifications required for this role; rather, the aim is to have a broad lived experience group to provide insights.
Other information
The Panel will meet 3-4 times per year (for 3 years). Meetings will be held online (via Microsoft Teams) and go for one hour. There may be pre-reading required. Members can leave the Panel at any time during the 3 years without any impact on their relationship with the MS Nutrition Research Program.
An honorarium of $37.50/hour is offered. Training and support is provided by the Curtin Involve team.
Applications close Friday 6th December 2024