LUCAP: Lung Cancer Clinical Quality Data Platform – Community Advisory Group

The project

The Lung Cancer Clinical Quality Data Platform (LUCAP) project seeks to improve the care of people with lung cancer.

Researchers at Curtin are collecting simple clinical data, such as appointment dates, diagnosis and treatment, from hospitals in WA and other states to compare the care against the agreed quality standards across Australia.

They will publish reports showing the different performance across the hospitals, which will serve to drive improvements in the quality of care across the health system. . An important part of the improvement process will be understanding consumer and community needs.

The involvement opportunity

The LUCAP research team are seeking to establish a Consumer Advisory Group (of up to 12 members) to advise and guide the project throughout its planning and implementation to ensure the project prioritises consumer and community needs and desires.

We are seeking consumers and community members, who have a lived experience of lung cancer or are a health professional working with person/s with lung cancer, to join the LUCAP Consumer Advisory Group.

The Group will advise the project management team and Steering Committee on what is important to them and what consumers and community would like to see achieved from the project.

Skills and experience

Lived experience of lung cancer: a person who has, or is a survivor of, lung cancer, or a person who is caring or has cared for a close friend or family member with lung cancer;

OR

Professional experience of supporting a person with lung cancer, such as a health care worker and including experience working with Indigenous person/s with lung cancer.

The LUCAP Consumer Advisory Group aims to include a wide representation of consumers and communities, including those based in metro, regional, rural and remote locations.

Aboriginal and/or Torres Strait Islander representation in the Group is desirable. Applications from all States and Territories are encouraged to apply.

Other information

2 meetings per year for 2 years, approx. 1.5 hours each (total 6 hours) online via Teams or Zoom.

Honorarium offered – $37.50 per hour (for individuals as well as well as those attending on behalf of an organisation.

Support and background information will be provided regarding some of the wider issues with lung cancer in Australia and the aims of LUCAP.

Applications close Monday 12th August 2024.